Jun 16, 2023
In this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the development of a checklist of diagnostic criteria to help health professionals diagnose LS accurately and quickly. Sophie highlights the challenges in recruiting participants for research studies, particularly ethical issues, and the responsibility of researchers to publish their findings to create real-world changes. The interviewee emphasizes the need for inclusivity in medical research, communicating with different groups, and improving research involvement among patients. She invites patients to reach out to providers or patient groups to learn about research opportunities and get involved in research organizations.
In this episode, you will be able to:
-
Delve into the challenges faced in Lichen Sclerosus research and the consequences for affected individuals.
-
Realize the value of spreading awareness about vulval and vaginal conditions to empower women.
-
Grasp the essential role education and accurate diagnosis play in successfully treating Lichen Sclerosus.
-
Investigate the impact of diverse and inclusive language in Lichen Sclerosus research on patient well-being.
-
Recognize the importance of increasing healthcare access and improving treatments for Lichen Sclerosus patients.
Connect with Sophie Rees on Instagram at https://www.instagram.com/vulva_resea...
Core outcome domains for lichen sclerosus: a CORALS initiative consensus statement (https://academic.oup.com/bjd/article/...)
Connect with us:
Instagram: https://www.instagram.com/lichenscler...
YouTube: https://www.youtube.com/channel/@lich...
Website: https://lssupportnetwork.org/
Loved this episode? Make sure to subscribe.